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Living Life with Celiac Disease

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Gluten

Finally Getting Back to “Normal”

Since my “Series of Unfortunate Events” last month, recovery was less than speedy. I am happy to report that although still emotionally up and down, I finally got back on the treadmill yesterday. I felt “alive” and happy. It didn’t matter that my endurance was affected and my pace slower, it mattered that I got on it and moved.

Celebrate small accomplishments when recovering from a “glutening.” As long as we keep trying to get out of bed and move, we are doing better than we were pre-diagnosis. May each of your days be better than the one before it. Happy Friday!

~Kate~

Gluten Free Persimmon Cookies

Made and tried persimmon cookies for the first time. I heard they were a “Taste of Fall.” This recipe from GlutenFreeda was a winner. It has cloves and cardamon which I absolutely love. They remind me of a gingersnap cookie (which is one of our favorites). We are adding them to our holiday family cookbook. Hope your Thanksgiving is safe and gluten free, filled with loved ones human and furry.

GF Persimmon Cookies

~Kate~

Slow Recovery

It is amazing the damage a piece of grain can do. Since my last post, “A Series of Unfortunate Events” my recovery is slow going. It’s been 6 days since my cross contamination at Red Robin and today is my first adventure out of the house. If not for Robert driving and accompanying me through the grocery store, for last minute Thanksgiving needs, I might be writing this from the floor of a shopping aisle.

The migraine is gone but the shortness of breath, brain fog, fatigue, joint pain, and exhaustion remain (I’m still waiting for the onslaught of hives).

The worst part of it all is knowing it may happen again. How many times do we play Russian Roulette with our body? When this episode is long forgotten, and I am caught up in the joyous whirlwind of love and family, I will let my guard down. I don’t know if it’s the black hole each episode leaves in my memory or wishful thinking it won’t happen again. Short of tattooing, “Do not feed the Celiac” on my forehead, I am doomed to repeat this mistake. Hopefully it won’t be days before a holiday again.

~Kate~

A Series of Unfortunate Events

The unexpected can come as a visit from out of town friends and/ or relatives, an unexpected night out, peer pressure, or lack of preparation. The latter is usually the one that gets me sick.

I was prepared for a visit from my out of state grandmother and my mom who brought her here from the airport. I had beans from the freezer, rice, tortillas, and a cornucopia of fruit. A safe haven for my celiac disease and a comfortable atmosphere for my guests.

I knew we were driving an hour and a half to visit Robyn and her family. I knew we needed to eat. I got caught up in the happy moment of family and let my guard down at Red Robin. I never have a problem with their fries since they are fried in separate oil and I ask for no seasoning salt.

My lapse of judgement was to order a fried egg on the UDI’s GF bun. In retrospect the egg must have been fried on a shared grill. Although I told the server of my allergy, the bottom line is: I trusted a stranger with my health. No matter how many times I make this mistake, it happens again.

The worst part of this whole experience? The voice in my head warning me, screaming at me not to order anything but fries. My desire to be somewhat normal pushed that voice aside and now I am spending my second day home sick from work and on the couch with a killer migraine, breathing problems, and digestive issues I will save for another post.

The bottom line? We aren’t normal, we have sensitive bodies that see wheat as the enemy. As we would protect our children from taking candy from strangers, we need to protect ourselves from taking food from strangers. Listen to that voice screaming in your head (not the one begging to be normal) the one that knows what’s better for you than you do. Be strong and good luck on your family visits and outings!

~Kate~

Grocery Shopping Made Easy

Ready every food label thoroughly could be overwhelming, exhausting, and confusing. Kate, stumbled upon a great app that allows you to insert allergies and other dietary preferences such as no added sugars or low sodium. The app has been a handy resource and I can’t help but recommend it to all my friends. It is also a great resource for your significant other, when they want to make dinner and have no idea what is “Safe”, they can use this app for help.

Once you create your account with your own unique needs, all you have to do is scan the barcode of the food you are interested in purchasing or consuming. The ShopWell app will either say AVOID (and will give an explanation why) or a number that shows that the food is a either a weak match, medium match, or a strong match for your personal dietary desires or needs.

The link for the FREE ShopWell app for iPhone users is posted below:

https://itunes.apple.com/us/app/healthy-diet-grocery-food/id393422300?mt=8

Livelifeceliac has no affiliation with the app.

 

Happy Shopping!

 

~JoJo

Foods to avoid

The link below is an invaluable tool for the newly diagnosed. It will help you prepare your kitchen and mindset to your new lifestyle. It can be scary and daunting to look at a list of “No’s,” but trust me it gets easier over time. If you get in a food frenzy and think you just might fail; Try Jif peanut butter on a banana, Nestle semi sweet chocolate chips in Chobani or Oikos vanilla yogurt, or fresh fruit on Breyers Natural vanilla ice cream. I don’t feel so bad after eating something so good and reasonably healthy. If you are dairy sensitive, don’t forget the Lactaid 😉

~Kate~

Livelifeceliac has no affiliation with the above mentioned products.

Foods to Avoid

Symptoms of Celiac Disease

Some Symptoms one, or all three of us have experienced: 

Behavioral:

  • Anxiety
  • Brain Fog
  • Depression
  • Irritability
  • Irrational Anger
  • Loneliness/isolation
  • Memory Loss, usually due to migranes
  • Mood Swings
  • Short Temper
  • Panic Attacks
  • Suicidal Thoughts

Skin:

  • Acne
  • Brittle Nails
  • Hives
  • Skin Rashes
  • Dark Circles Under Eyes after being “Glutened”

Intestinal:

  • Acid Reflux
  • Bloating
  • Constipation
  • Diarrhea
  • Gas that will clear a room, an isle in the store, or a small store in the mall.
  • Nausea
  • Stomach Pain

Joint/Muscles:

  • Back Pain
  • Burning Sensations in the Joints
  • Leg Cramps
  • Muscle Spasms
  • Swelling in Hands and Feet

Vitamin Deficiencies:

  • Iron
  • Calcium
  • B-12

Others:

  • Asthma
  • Bladder Infections
  • Blurred Vision
  • Chronic Fatigue
  • Hair Loss
  • Headaches
  • Dizziness/Vertigo
  • Hemorrhoids
  • High Blood Pressure
  • Migraines
  • Night Sweats
  • Sinus Pressure

Females ONLY:

  • Heavy, painful periods
  • Hormonal-level swings

References:

Celiac Symptoms

Here are a few Links that we have shared on other social network sites:

What you Don’t Know about Gluten

What I Want You to Know About Celiac Disease

Gluten Sensitivity Self-test

When I Went Gluten Free

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